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#autism

81 messages65 participants4 messages aujourd’hui

This week I launched a book, signed dozens of books in bookshops, was interviewed about being autistic for the Irish Times (published today), had a photographer come to the house, travelled to another city, spoke to multiple strangers.

I also got overwhelmed and cried on a city street, lost the ability to speak for one hour, felt anxiety to point of body shaking, woke in night with anxious thought spirals, felt increased sensory sensitivity.

This is #Autism

@actuallyautistic

Are people in your #dreams typically people you know or strangers (even if in the dream you seem to know this stranger)? I've always dreamed of strangers, rarely dream of anyone I know, and was late diagnosed with #autism. Wonder if there's a link.

My dreams are usually populated by:

Women and Girls on the Autism Spectrum, 2e: Understanding Life Experiences From Early Childhood to Old Age by Sarah Hendrickx, 2024

The difference that being female makes to the diagnosis, life and experiences of an autistic person is hugely significant. Sarah Hendrickx combines the latest research with personal stories from girls and women on the autism spectrum to present a picture of their feelings, thoughts and experiences at each stage of their lives

@bookstodon
#books
#autism
#women

@actuallyautistic

Thanks to an excellent suggest by @darrellpf I watched The Residence on Netflix. It turned out to be highly enjoyable and I would thoroughly recommend it, especially if you enjoyed Only Murders in this building. Not that the stories are similar, but both have clearly autistic characters in the lead, that are presented very relatably and sympathetically.

The show is extremely well written, funny and clever. With a great cast, characters and interactions. The way it is shot adds much to the story and the editing of the episodes is brilliantly done, to carry it all forward in a highly entertaining and funny way. (Note to American filmmakers, the reason your TV is doing so much better than you are, is because the good series are telling a story and a good one and not just flashing a series of vaguely connected special effect episodes at you, in the hope of making one. Rant over.)
It is a whodunit and like any good whodunit, there are an abundance of clues and suspects. More than enough and handled in a way that doesn't jar, or make things too obvious. In fact, everything you need to work it out is there, unlike some shows, but blink and you could miss it.

I suppose one warning. The residence is set in the White House, which may be a bit triggering these days. But, it's not really political, more using it as a setting.

#Autism
#ActuallyAutistic

Suite du fil

…The #Senate confirmed #RFKJr largely because he won over the chair of the Senate #Health Cmte, #BillCassidy, Republican of Louisiana, who is a medical doctor & strong proponent of childhood #vaccines.

Cassidy has said that further #research into any supposed link between vaccines & #autism would be a waste of money & a distraction from studies that might shed light on the “true reason” for the rise in autism rates.

On Thurs, Cassidy said he wanted confirmation of #DavidGeier’s role…

Suite du fil

#DavidGeier, has published numerous articles in #medical literature attempting to tie mercury in #vaccines to #autism. In 2012, state authorities in Maryland found that he had been practicing #medicine WITHOUT a license alongside his father, Mark Geier, who was a doctor at the time.

MD authorities also suspended Mark Geier’s #MedicalLicense following claims that he #endangered #children w/ autism & #exploited their parents, acc/to state records.

#science#health#Trump

The MOVE 4 Kids Event is a national fundraising event in support of the MOVE by GoodLife Kids physical activity and fitness program for youth with autism and intellectual disabilities, offered by GoodLife Kids Foundation.

If I raise enough in donations to let at least one kid with #autism or other #intellectualdisabilities to use this valuable resource, it'll be awesome. It's a great program for kids who are often left out.

I hope my #infosec colleagues can help me blow this goal out of the water! More info, and donation link here:

goodlifekids.akaraisin.com/ui/

To my fellow famously #protest-averse #Americans:

#April5

#MoveOn, #Indivisible, 50501, etc are having nationwide demonstrations

Everyone show up

*Everyone*

"But I have to go to Starbucks and scroll Instagram"

The #economy is about to go in the toilet due to #Trump. That's a thing a lot of you assholes pretend to care about

The rest of us will be there for #NeriAlvaradoBorges

Deported to #ElSalvador over a "gang" (#Autism Acceptance) #tattoo

Find your local spot

Show the fuck up

@actuallyautistic

It is an oft repeated phrase, that we live in a world not made for us and with it comes the understanding of the harm that this can do to us. In many respects that harm is actually easy to see, especially once you start realising that, no, it's not just you, and stop convincing yourself that it's nothing and that it can only be a sign of how broken you are, if you can't cope. The world of man really is too loud and bright. They really don't notice the smells and the over crowding, the sheer amount of peopling it takes to even do the simplest thing and the way that everything is geared in such a way that it has to be in done in their way, with ever-increasing barriers of impossibility if you try to do it in any other way. That the way things are, the world really isn't set up for us and the willingness to soften that, to allow for other ways, is limited at best, always to our ongoing cost.

But, for me, there is something deeper than this that has, perhaps, caused me more harm through my life, that has led to more confusion and conflict and trauma than even the sensory overwhelm and torture of existing in their world. It is, well, I suppose you could call it the how's and why's and what's of their world. The underlying framework that defines it and them. All the assumptions and shared perception that is like the unwritten code of their existence and which they just take for granted and that I just struggled to even see, let alone understand.

Some of it, of course, I could work out. Like, the ways their societies always revolve around status driven hierarchies. Whether that be school, your book reading club, or the country as a whole. I could even accept that this was simply the way they think, just as, in so many ways, it's not the way I can think, or see the world. But, the basis for, say, the status, why being one way was good and valued, and another, virtually equal way, wasn't. Why sex should affect that, or race, or religion. or anything really, except the judgement of the thing in and of itself, was beyond me. There were just so many invisible, and taken for granted, ways that things were seen, except, it seemed, by me. All the ways that something was, just, obvious. Not in the way you might argue that your football team was better than another one. But, in the ways that no one even thinks about, or even realises is actually a judgement. What should and shouldn't be, why and how.

Yet I could see it, that all too often the assumption that something was so, didn't really make it so, not with the way my mind worked anyway, and also found that trying to get an answer to why it should, just never seemed to happen, not when no-one else even seem to understand the question. It just meant that walking through their world became like walking through an endless minefield for me. Where, sooner or later, I just knew that I was going to step into something that would blow up in my face. Not because I tried, or wanted it to, but because I simply couldn't help it, not when I couldn't even see it.

This, to my mind, is where the real harm of living in a world not meant for us can come from. Not the overt, but the covert. From the fact that we are always in a place that we can never really understand, or deal with. Not with any certainty, anyway. That there are always unknowns and unknowables, waiting to trip us up, or for us to crash into. That there are always ways of being hurt and, indeed, hurting others, that we can't even begin to see and, because of that, forgive ourselves for, until we realise this, anyway.

#Autism
#ActuallyAutistic

I remember reading about "Joey the Mechanical boy" in a psych textbook from Uni. years and years ago. I took it at face value back then as a schizophrenic young boy. Recently I thought about it and found: blogs.uoregon.edu/autismhistor

blogs.uoregon.eduBruno Bettelheim, “Joey, a ‘Mechanical Boy’,” 1959 – The Autism History Project